So I need some advice - from other parents, but particularly other parents who have children with special needs. I need advice about how to manage this crazy life with all the appointments and busy-ness and how to look after yourself as well.
My dilemma is this. I am tired. All the time. We have appointments nearly every day of the week: therapy for A1's vision, physiotherapy, occupational therapy, speech therapy, hydrotherapy, doctors appointments for kidneys, eyes, brain, hormones etc. Plus there are always little extras like looking at wheelchairs and IFSP meetings. There is always something. So I am genuinely asking other mums out there - how do you juggle all of this and still have time to take care of yourself as well? If I am going to care for A1 long term then that means I need to take care of myself too. I need a long term plan. Do you have a plan? What is your plan?