Friday, April 10, 2009

Results are in...

I got Little A's blood results yesterday afternoon - everything is STABLE (got to love that word).

Creatinine: 195
Urea: 8.3
Sodium: 144
Haemoglobin: 169

The blood draws are getting harder and harder. As soon as I put her on the bed she knows something bad is coming and just SCREAMS hysterically. I HATE having to hold her down for procedures - it is traumatic for both of us. I have lost count of the number of times I have had to hold her down for a procedure. She is inconsolable during them and fights like a little wild cat - often I need a second person to help hold her down as she is so strong now. Yesterday in the middle of her screaming, she yelled out "Bye-Bye" which nearly broke my heart. For a child with delays like Little A's that was such an achievement in communication - she was trying to tell us using her voice that she wanted it to be over. I'm not usually a crier, but even I felt like crying at that point.

At least it is over for now, and because the results are stable we won't have to have it done for another 3 months. We see the kidney specialist on Tuesday for a review, but hopefully it will just be routine seeing as the blood results are good.


Sarah said...

Excellent to hear the levels are stable!

Sorry to hear how traumatic it was :-( it would have made me cry too hearing her say bye bye, but on the other hand such a clever girl to associate that with wanting it to be over.

Ally said...

Great results Alison, what a relief.

Good luck at Tuesday's appointment!

Little A is such a trooper :)

n0thingbuteverything said...

Great results!!!

I so feel for you with the procedures. Hopefully once she gets a little older you will be able to forewarn her a little and offer some rewards. I really hope it gets much easier for you all!!!