I got Little A's blood results yesterday afternoon - everything is STABLE (got to love that word).
The blood draws are getting harder and harder. As soon as I put her on the bed she knows something bad is coming and just SCREAMS hysterically. I HATE having to hold her down for procedures - it is traumatic for both of us. I have lost count of the number of times I have had to hold her down for a procedure. She is inconsolable during them and fights like a little wild cat - often I need a second person to help hold her down as she is so strong now. Yesterday in the middle of her screaming, she yelled out "Bye-Bye" which nearly broke my heart. For a child with delays like Little A's that was such an achievement in communication - she was trying to tell us using her voice that she wanted it to be over. I'm not usually a crier, but even I felt like crying at that point.
At least it is over for now, and because the results are stable we won't have to have it done for another 3 months. We see the kidney specialist on Tuesday for a review, but hopefully it will just be routine seeing as the blood results are good.