Wednesday, January 27, 2010

Update to the update...

I followed up with Ashlea's renal team today and they called her in for a thorough examination - MUCH more thorough than the ED - although the report from the ED made it sound like they'd done a really thorough job...

They checked her over and she doesn't seem to have anything sinister.  She did crawl more for them.  She had more motivation - she wanted to get out that door and away from the doctors!  She was quite wobbly and still very slow (at one point she said "I want to go fast"), but seems a little better than yesterday.

The main thing they had to check for was Guillain Barre syndrome - something totally awful that nearly gave me a heart attack when I googled 'swine flu vaccine' and 'muscle weakness'.  She doesn't appear to have this as it is an ascending paralysis.  She isn't paralysed, just weak, and she still has all her reflexes (like all good CP kids).  Anyway, we are keeping an eye on her and if she gets worse we are to go back.  We are all hoping she will improve on her own - and quickly too.  It took her SO LONG to learn to crawl that it is heartbreaking to see her really struggle with it.

In other more exciting news...Audrey goes back to preschool tomorrow.  She has chosen a new bag, lunch box, hat etc.  She has a bit of a Barbie / Princess theme going on...


And the BIG news is that Miss Ashlea's first day of preschool is Friday.  No surprises that she chose an In the Night Garden bag.  No need for a lunch box or drink bottle though - so we're taking a cool chair instead!   Look out for a'first day of preschool' post later in the week!

6 comments:

Sarah said...

Hope Ashlea starts improving very soon.

How cool is Audrey and Ashlea's preschool supplies! Hope they both go well, look forward to your 'first day of preschool post'

Sarah said...

Oh not to mention Emma's 1st day of 'big school'

Alison said...

Big school doesn't start until next Wednesday. That's a whole 'nother post!!!

Susan, Mum to Molly said...

That cool chair seems strangely familiar... ;-)

I hope both your Miss A's have fabulous days tomorrow and Friday, and that Ashlea is recovering more & more.

Please please don't feel too guilty about the beach - but if you want to start slowly and just dip your toes in you're welcome to come & try our 'beach' (sand covered boat ramp). If it all goes pear-shaped you're just 5 mins from home...

Raymond said...

Oh preschool, how fun for them. Hopefully she just gets stronger and maybe this was some weird bug!

Ally said...

Hope Ashlea starts to improve asap Alison, must be so hard to see her struggling, poor little mite. I hope she's back to her usual self in no time.

I love the girls school stuff! I hope Ashlea has a wonderful 1st day tomorrow <3