I have seen another mother, who appears to have a child at school and a younger child who is also in a wheelchair. I have spied her in the distance as we've both been wrangling wheelchairs out of vans and school children through the gate. I am going to
In other news Ashlea seems to be making a little improvement in her crawling. She is still quite weak and can only go short distances, but she seems more willing to try and crawl so that has got to be a good sign. Her physio saw her last week and was shocked by the change since our previous appointment. She advised us to give Ashlea as much opportunity to crawl as possible, and not to use the standing or walking frames at the moment as she is too weak. Even though it was bad that she was shocked by Ashlea's condition, it was good to have someone who knows Ashlea confirm that I'm not going crazy and that there is a noticeable physical difference in he rmuscle tone and strength - someone (a medical person who shall remain nameless) had suggested to me that perhaps this was an attention seeking thing...as if Ashlea has the cognitive skills to be able to do that. Or maybe they thought I was being the attention seeker...who knows!!
Ashlea also had an eye appointment last week. The eye doctor confirmed that during her last EUA her prescription seems to have changed significanly (from +5.00/-6.00 to just plain old +1.50). I can't figure out how this is possible - the implication is that she may not even need to wear glasses. Don't get too excited - she is still legally blind due to her optic nerve hypoplasia - just that the vision she has she may not need glasses for. The problem is it is nearly impossible to test her eyes at the clinic due to her hatred of doctors and medical procedures, so I am going to do a little test of my own at home. I am going to get the new glasses made up, and then get the orthoptist from RIDBC to come out and do a vision assessment - once with the old glasses, once with the new glasses, and once with no glasses. Whichever she gets the best results on is what we'll go with. I know I sound a little crazy at this point, but I think it is the only way to test her eyes somewhat accurately - short of having another EUA - which the doctor tried to schedule for 3 months time. Not likely mate.
I've got to go and do all my grown up 'school mum' jobs now in preparation for the week. Does anyone know how to iron culottes? Or even why anyone would think they were a good idea for a school uniform???