Do you still hold out hope that your child will beat the odds and be the only child ever with their diagnosis to walk. Or talk. Or eat - or whatever it is that you want them to do that they can't do?
Someone asked me last week when Ashlea would walk. I told them that she wouldn't. Which is true. It is very unlikely Ashlea will walk independently.
I have given up hope of it ever happening. Is it sensible to give up hope? Hope can be a heartbreaker if what you hope for never happens. Or should I keep hoping and praying? I have kind of given up praying too (not altogether given up praying, just stopped praying for Ashlea to walk).
I still believe that God could help Ashlea to walk. I used to pray for her to 'walk, talk and eat sandwiches'. But I've kind of stopped. Stopped praying. Stopped hoping. Stopped expecting.
But Ashlea continues to make unexpected improvements. Have a look at this video taken yesterday at the physio. Now don't freak out - she can NOT do this unsupported. But even the fact that she can do it at all is such a huge freaking improvement that I wonder... Should I get my hopes up? Or will it just break my heart?