Busy with building, because work on our ramp has finally begun! Ashlea has discovered she can crawl all the way from the back door to the middle of the yard ALL BY HERSELF. Unfortunately we still have that bat shit situation going on so it isn't ideal for her to be crawling around on the ground. However once that problem gets solved she - actually all of us - will be very happy. Sadly it will be costly for me as she is going to wear through many pairs of pants crawling across the wood and concrete.
We have also been busy because Ashlea had botox today - her 3rd series of injections. They did the same muscles as last time (hamstrings and calves). When they examined her they noticed that the muscles at the front of her legs were showing signs of spasticity, but as she is still able to crawl and move freely they didn't botox them this time, but they did say she may need those muscles treated in the future.
I asked the doctor another of the 'hard questions'. Even though I know that Ashlea is unlikely to walk, I still felt the need to ask "Will she walk?". I have accepted that she won't, but then she keeps surprising me with her achievements, and so I have started to wonder... maybe... what if .... should I get my hopes up??? The doctor's feeling was that as someone with a GMFCS level 3 cerebral palsy, she could possibly walk with a walker, but not independently. Which is what I expected him to say.
And you know what? I'm not disappointed with his answer. If (and that is still a big IF) she could learn to walk with a hand held walker - and if she could use it for a reasonable amount of time, that would be a HUGE achievement - something that no one would have predicted for her.
Funny how your perspective changes. Once upon a time I would have been devastated to hear that her only chance of walking was with a frame - now I think that if she can master walking with a kaye walker I will be over the moon. I'm still not convinced it is a realistic goal, but we are going to aim for it anyway!!
And now for the Big Milestones of the week.
Firstly, Emma has lost her first baby tooth. It's very exciting and I have to remember to play tooth fairy tonight otherwise there will be a very sad girl tomorrow morning.
Flattering photo I know - I'll start save for her therapy now.
But the really BIG milestone of the week, is that Ashlea pulled herself up to standing ALL BY HERSELF. Well kind of all by herself.
If an adult is sitting on the couch, Ashlea can crawl over and push up on the couch / pull on the adult's jeans and get up into a standing position. The first time she did it was for my mum, so I didn't quite believe it (aside from being miffed that she chose to perform such a huge milestone for someone else). But later that evening she did it again.
You can see why I keep wondering if I should get my hopes up can't you? Who would have thought she would be able to do that???
I tried to get it on film the next day with no luck (that is how I discovered that she needs someone to sit on the lounge to help her stand up). I was standing up filming her and she just couldn't get up, but as soon as I gave up and sat down on the couch she came over and was able to get up. I'll try and get it on video for you over the weekend!!! For the time being you'll have to be content with this dodgy snapshot!
Excuse the pants falling down - she often crawls out of her pants!