For those who live in other parts of the world, you may not be aware that in Australia we are in the middle of an election campaign (unfortunately).
Both sides of parliament have made some promises regarding funding for disabilities - however I still don't know who is offering the best package, and which party is most likely to support the introduction of a National Disability Insurance Scheme.
The Labour Party has offered $6000 a year to families to spend on early intervention. Beauty I thought. I could use that for private OT to deal with Ashlea's sensory issues. I could use that for more speech therapy. I could use that for.....any number of things.
This week I got a letter in the mail from the RIDBC saying that they are very supportive of this initiative. I was wondering if they were hinting at who they thought we should be voting for. Anyway, that wasn't the part of the letter that bothered me. As I read further, they revealed that if this were brought in they would start to charge us for their services - and isn't that great we'd all be able to use our $6000 to pay for it.
ARE THEY SERIOUS???
How can they not see that families like mine have other needs as well? Why would I support them in this push if it is going to mean that I end up getting charged for a service that I now get for free? There would be no net gain for me at all - I would get the same level of service from them and still have no money for the extra services that Ashlea needs.
I was under the impression that they already get government funding for each child on the service anyway. Isn't that double dipping???
I'm a little bit outraged, and think I will have to take a leaf out of Di's book and start writing some letters. It is just so disappointing as they are by far my favourite service and have done absolutely amazing work with Ashlea. I know they are a charity and struggle for funding, but it really feels like a low blow.
I'm not sure if any other services are going to consider doing the same thing. I asked at the Spastic Centre - sorry Cerebral Palsy Association (YES - finally a name change!!!) - and they hadn't heard of anything like that.
So, letter writers, any ideas on how I should word my letter?