This afternoon Ashlea had an appointment with her kidney specialist. We haven't had a check up for two months so my heart was in my mouth as we waited for Ashlea's blood results. After all our mental preparation for a November transplant I was half expecting a huge change in creatinine and therefore a change to the transplant date.
Here are the results:
Creatinine 395 (up from 349)
Urea 14.7 (better than expected)
We are still on track for a November transplant, but much to my horror they have changed the date anyway! Apparently there was a clash with a liver transplant and who knew, but livers trump kidneys. Our new date is 17-11-11. It just doesn't have the same ring to it I'm afraid, but what can you do?
I really struggled at the hospital today. I just did not want to be there. I know no one ever wants to go to hospital appointments, but usually I just try and accept that it is part of our lives. Today it didn't work. It really got under my skin that this is our life, and that other people don't have to deal with all this crap. Ashlea was a trooper though. She cried during her blood test - but no more than any other child - which is a huge improvement on her screaming, thrashing ways of the past. She also lay still-ish for a hip x-ray, co-operated without even a whimper for her blood pressure, and barely a whimper for the weighing and measuring. She did keep up her refrain of "Is is time to say bye-bye yet?" but I think that's fair enough.
So - reality check - this is definitely happening. In November. Can someone remind me how we got here?