Not being a fan of group therapy, I mainly used the time to raise some issues that I don't think the medical team have thought of yet. Things like:
- what sort of hospital bed will they provide for Ashlea's safety,
- is there an outreach nurse who can come to our house for the daily blood tests following the surgery,
- can Ashlea have a central line rather than being traumatised every day for 2 months with blood tests, and
- don't forget she can't swallow - anything - so make sure all medications are in liquid form
The psychologists promised to follow up on those things and unless we feel we need to see them again they won't see us until the transplant has taken place.
They did ask the children a few questions to see how much they understood.
Is it time to say good-bye yet?Amen to that.
Emma was quite cagey with her responses which I think shows she is quite anxious about the whole thing. She is prone to anxiety so it will be hard on her - and Audrey too.
At the end of the session the psychologist turned to me and asked me if I had any concerns about the transplant.
Um, I don't know - maybe that Ashlea or I could die.
Is she serious? She's already seen that my kids are anxious about the situation - does she really expect me to answer that in front of them?
(Disclaimer - I know it is very unlikely either of us will die - but it is major surgery and I am a natural born worrier. If it's only a little worry I don't bother with it anymore - but I do go to town on the big ones).
Needless to say she got a very guarded answer.