Wednesday, April 25, 2012

T +27 Lest We Forget

Today is Anzac Day.  Many of you know my Grandfather was an Anzac who fought at Gallipoli and on the Western Front so I like to stop on Anzac Day and reflect on the sacrifice so many have made for our country.

This year I have also been reflecting on Anzac Days past.  This day 6 years ago was the first time the doctors came to us and told us Ashlea might not make it through the night.  She was 5 days old, weighed 570gm and had gone into acute renal failure.  Her potassium was high, her blood sugar was low and she was ventilated - the doctors were doing all they could but they didn't know if it would be enough.

Who could have predicted back then how things would play out?

Who would have thought we would have - and love having - a child with a severe disability?  Who would have thought Murray would give her a kidney?  And in the process suffer a hypoxic brain injury??? 

What a crazy ride we've been on.  Sometimes it sounds so crazy I'm almost embarrassed to tell people our story - surely it can't all be true??  Has it really all happened to us???

And so here we are at Anzac Day again. Ashlea's kidney function is now great - the best it's ever been.  Her creatinine today was 31 but we are still juggling her tacrolimus dose - it seems she is very sensitive to it.  Hopefully we only have a few more days of daily blood tests - next week we should be down to 3x per week.  Murray has started rehab and is doing well.  He is mainly working with an OT on cognitive / memory training exercises as well as doing a little bit of physio.  He seems a lot more 'back to his old self' in the last couple of days.  It is very encouraging to see these obvious improvements!

Thank you all for your ongoing support.  The list of people to thank is now endless so I'm not going to even try!  If you have done something for us - anything at all - please know we are very appreciative!

7 comments:

Susan, Mum to Molly said...

Dear Alison - if it takes a village to raise a child, then to get through a crazy ride like you've had over the past four weeks must surely take a small city...

I for one (and I think I speak for many, if not all, of us reading) have been very, very happy to help in the small ways that I have been able to.

You are so very welcome, and if there is anything else that any of us can do over the coming weeks, please don't hesitate to ask us!

Lots of love, Susan xx

PS: The ducks are in fine form at the moment - when you & Ashlea are ready...

Deb L said...

Glad to hear about Ashlea's happy kidney and Murray continuing to improve. :)

ferfischer said...

Sometimes I have those days - where I think - "wow, has all of this really happened to us?" The odds are staggering against it, yet here we are. Glad to see the improvements!

Anonymous said...

Hi My name is Peter Glover, i work on the same floor as Murray. I am so glad your daughter is responding to her transplant. I am also pleased to hear that Murray has started a positive recovery, (i think the iPad helps, lol). Please extend my regards and good wishes to Murray. God Bless to you all and to the wonderful medical staff that make these miracles happen. Peter Glover

Casey said...

Im so pleased Murray seems to be doing better - it must be terrifying for the both of you to consider the possibility of him not recovering fully.

Go Miss Ashlea!

Big brother, Little sister. said...

Alison, you really must write a book on your, lets say ,adventures! thinking of you everyday and so pleased Ashlea is doing so very well and wondeful to hear of Murrays continued improvement xxxx hope you are holding up okay xx

Sarah said...

Great to hear Murray is improving x