Today is Anzac Day. Many of you know my Grandfather was an Anzac who fought at Gallipoli and on the Western Front so I like to stop on Anzac Day and reflect on the sacrifice so many have made for our country.
This year I have also been reflecting on Anzac Days past. This day 6 years ago was the first time the doctors came to us and told us Ashlea might not make it through the night. She was 5 days old, weighed 570gm and had gone into acute renal failure. Her potassium was high, her blood sugar was low and she was ventilated - the doctors were doing all they could but they didn't know if it would be enough.
Who could have predicted back then how things would play out?
Who would have thought we would have - and love having - a child with a severe disability? Who would have thought Murray would give her a kidney? And in the process suffer a hypoxic brain injury???
What a crazy ride we've been on. Sometimes it sounds so crazy I'm almost embarrassed to tell people our story - surely it can't all be true?? Has it really all happened to us???
And so here we are at Anzac Day again. Ashlea's kidney function is now great - the best it's ever been. Her creatinine today was 31 but we are still juggling her tacrolimus dose - it seems she is very sensitive to it. Hopefully we only have a few more days of daily blood tests - next week we should be down to 3x per week. Murray has started rehab and is doing well. He is mainly working with an OT on cognitive / memory training exercises as well as doing a little bit of physio. He seems a lot more 'back to his old self' in the last couple of days. It is very encouraging to see these obvious improvements!
Thank you all for your ongoing support. The list of people to thank is now endless so I'm not going to even try! If you have done something for us - anything at all - please know we are very appreciative!