Thank you all for your continued support.
Murray has had a good night in the ICU. He is now requiring no blood pressure medication at all and his oxygen levels are a lot better. I haven't yet spoken to the doctor but his overnight nurse said the plan was to start trying to wean him from the ventilator today.
Miss Ashlea is a little miserable this morning. She is still very fluid overloaded which is making it hard for her to breath. They have decided to turn her epidural off in the hope that she can be more mobile and try and shift some of the fluid. The problem with that is that her pain will be a lot worse today. At the moment we are trying to manage her pain with oral medications - which means we also have to manage her nausea from those pain meds.
Overall though she is doing well. Her kidney function is spectacularly good - her creatinine is 28. 28!!!
The plan with Ashlea is to try and get her onto all oral feeds and pain medications so that she will be more free to move around and clear the fluid that has built up in her tissues. She is quite puffy and uncomfortable and her lungs have quite a bit of fluid in them. They have given diuretics to help shift some of the fluid - the problem is they only work for a short time.
We are hoping to sit her up later today and if she is up to it to possibly go for a little walk in the wheelchair. This is where having CP as well as kidney failure really sux - she needs to be mobile to help recover from the surgery but her mobility is severely affected by her CP.
Ashlea's lovely preschool teacher from last year is going to come and sit with her this morning so I can go and visit Murray. Carolin is bringing the girls over to visit Ashlea this afternoon. I really don't know whether to let them see Murray. Emma in particular is prone to anxiety so I don't know whether it would be helpful for her to see him like that or to wait until he is a bit better. Any thoughts??? A good friend who has done the ICU journey has given me some good suggestions but I thought I'd see what the general consensus is. At the moment Emma and Audrey have no idea just how sick Murray is. I really don't know how much to tell them.
Thanks again for all the prayers and well wishes. I will update you all again this evening.