- being in the presence of Julie;
- getting to sing with Julie (the whole audience - not just me);
- a hair cut - the first one in a year;
- a night out without kids;
- the chance to catch up with some kidney mums who get it. Sometimes I wonder if we sound like we are speaking another language when we start in on our kidney chatter;
- the chance to catch up with some special needs mums who get it. Our conversation included such statements as $665 for x? Wow that's cheap! It's all relative in the land of disability - we decided that if it is less than $1000 that is the non-special-needs equivalent of being less than $100;
- finding out about some electricity discounts we are eligible for that I didn't know about;
- Thermie has been ordered;
- living close to the hospital so that when I run out of meds 4 days before our next appointment it isn't TOO onerous a task to make a special trip - and the thoughtful pharmacist who arranged outside scripts for some of the meds so that now there are only two that HAVE to come from the hospital - which will hopefully save me having to make quite so many extra trips;
- a productive excursion with the school OT to JB Hifi - we are going to try and get Ashlea this touch screen computer for school. I want Ashlea to start doing all her school work on the computer. Realistically she is never going to be able to hand write - learning to use a computer is a much more achievable goal.
|We got excited by how far back the screen goes. We|
will NOT be using that keyboard or mouse though!