Thursday, August 29, 2013

Thankful Thursday 29th August

This week I am thankful for...

- beautiful spring weather even though it is still winter (but only for two more days);

- a rare evening out for coffee with friends;

- fun, inclusive birthday parties that all of my children can attend together;

Dr Ashlea and I performing abdominal surgery on a rather unfortunate patient

- doctor themed inclusive birthday parties where the goody bags include syringes and face masks.  I know they were meant to be for the kids to play with but they quickly went into my supply cupboard;

- a fun sports carnival for Ashlea - yes I am going to post the video again;



- Super Neighbour Kate and Super Aunty Carolin for minding the girls tonight while I take Murray to a late MRI appointment;

- the clever cheekiness that is Miss Ashlea.  On Sunday she did not want to go to Sunday School she wanted to stay home and play her ipad.  Instead of throwing a tantrum she put on an INCREDIBLY convincing impersonation of a sick person.  She had her Sunday School teachers convinced that she was sick and needed to go home.  I gave her the benefit of the doubt and took her home - where we had the following conversation:

Me:  Ashlea were you really sick at Sunday School or did you just want to come home? 
Ashlea:  (laughing hysterically) Just want to come home
She then paused her laughter and adopted the sick voice she had used that morning:  I not feeling very well.
Cue more hysterical laughter.


Don't forget this Sunday is the Big Red Kidney walk.  If you would like to sponsor us click this link:

Team Ashlea



Thankful Thursday

Tuesday, August 27, 2013

School Carnival Win

Ashlea had her school sports carnival today.

So much win.

I must admit to having to stifle the urge to sob at the sight of all the children competing.  All of the children have faced more hurdles before reaching primary school than most of us will ever face in a life time.  You're not just watching a school running race, you are watching SURVIVORS demonstrate the determination, courage and grace that has helped them overcome all the obstacles put before them. 

Here is my little winner in one of her races.


She had to run up and back 3 times
with that bean bag and then run all the way
to the end.  

She refused to use her walker.

I wonder if next year she will be able to do it on her own...?

Thursday, August 22, 2013

Thankful Thursday 22nd August

Before I get to being thankful I thought I'd share a few thoughts on practising thankfulness.

I don't do Thankful Thursday because life is dandy - rather the opposite.  Life is kind of complicated right now.  That's the whole point of Thankful Thursday.  It is about stopping and looking at what I DO have even amidst all the difficulties.  Being thankful isn't 'proof' that I'm coping really well or that things are easy.  It's a CHOICE to see the good and not be swallowed by the darkness.

Right.

Back to the thankfulness.

This week I am thankful for:

- my little ballerina;



- her vision teacher who took her on a 'special field trip' this week - to another classroom to see a cuckoo clock;

- a catch up with a lovely old friend who gets me;

- a catch up with a lovely mum who gets it;

- a catch up with another lovely friend who really, REALLY gets it;

- the fun that is texting with my kids - and seeing what they text to each other;


Emma freaked out when this popped up on her ipod one night...
until she realised it was from sweet, innocent little Audrey


- a husband who is just happy to get fed and is not overly fussy about what he gets fed;

I know it looks like something Bridget Jones would
make but it was actually quite tasty...

- my first successful park of the new van in a 'real' car park.  I know it doesn't actually help to duck my head when driving into a low car park but I doubt I will be able to stop myself doing it;

- a little taste of spring sunshine over the weekend and days that are starting to get longer which show that REAL spring is coming soon.


Thankful Thursday

Thursday, August 15, 2013

Thankful Thursday 15th August

This week I am thankful for:

- chocolate self saucing pudding with ice cream;

For dinner no less...

- Aunty 'I did 4 unit maths' Carolin being on holidays this week...and being home at just the right time to help with year 3 home work and the explanation of fractions;



 - chickens to serenade and ponies to ride;

This photo needs a caption don't you think...?


- a couple more donations to sponsor our Big Red Kidney Walk - thank you Jen and Anonymous;

- a week of scratch free motoring in the new car;

- blue tooth in the new car - I love being able to listen to my ipod while driving - see it really is the little things that make my day;

- lovely sunshine-y 'winter' weather;

- a chat with someone who gets it;

- the chance to meet with some Special Needs parents from church tonight to pray for each other and our kids.


Thankful Thursday

Tuesday, August 13, 2013

The little things

I think a lot of people look at me and think 'WOW - I don't know how she does it' when they look at the big picture of me having a child AND a husband with a disability to care for.  I don't tend to focus on the big picture - lest I completely lose my mind - I just get on with life.  The thing is that often it's not the big picture that does my head in... sometimes it's the little things.

Sometimes it's the little things that can make or break my day.  This post is going to be the opposite of Thankful Thursday - maybe I will call it Tell It Like It Is Tuesday :)

Little me tell it like it is this fine Tuesday...

I canNOT wash any more feeding pump bags.  I am done.  Somehow, somewhere I will have to get an entire year's supply because I refuse to wash another one EVER.

I HATE it when we have a feeding pump fail that results in a bed full of milk and stomach acid to clean up in the morning (especially when 'morning' is 4am because Ashlea has woken up all wet and sticky)

I am so over having to keep track of prescriptions.  It's not even having to go to the pharmacy to fill the prescriptions that irks me the most - it is making sure we have the right prescriptions at the right time.

The same applies to doctor's referrals (anyone want to guess how I've spent the last two days...?).

Aaahhhh - it feels so good to get that off my chest.  I'm sure you all have more you can think of. Feel free to share - Tell It Like It Is!

On the flipside sometimes it is the little things that make my day - like Ashlea's Chicken Whisperer Serenade from Sunday (some of you will have already seen this on facebook - it's too cute not to post here too).



(Seeing as videos don't seem to get sent through on the email version here is the youtube link).


Thursday, August 8, 2013

Thankful Thursday 8th August

Today I am thankful for:

- faithful service provided by our old green van;



- the faithful family who gifted us the old green van;

- a shiny new white van to replace the old green van.  I am trying to be excited about having a new car rather than feeling sick at the expense of it!

It's really, really, really, really BIG said Ashlea

I look like a kid in the driver's seat - I almost need a cushion to see
over the steering wheel!

- Carolin's workplace for sponsoring us $500 for our Big Red Kidney Walk (if you want to sponsor us too the link is:  http://bigredkidneywalk2013.gofundraise.com.au/page/Teamashlea)

- a council clean up and the therapeutic benefits that come with throwing out rubbish;

- another month of stable kidney function for Ashlea.


UPDATED to add one thing I forgot!  My new number plate is YBU!  Hilarious - Why Be You....when you could be ME driving this awesome big bus!


Thankful Thursday



Tuesday, August 6, 2013

I hate making decisions!!!

A few weeks ago I asked you all whether you thought we should put Murray's superannuation payout towards the mortgage or towards a new car.

Funny how things turn out.

We put all the money on the mortgage with the hope that the van would last a bit longer - but it was not to be.  The van has been pronounced 'stuffed' by the mechanic - yes that was his technical term - and it looks like the time has come to buy a new car.

We do have a second smaller (but still 10 year old) car but it is very hard to lift Ashlea in and out of and I have to take the wheelchair apart to fit it in the boot.  I do realise that when you have two cars these things could be classified as first world problems - but if I stuff my back lifting Ashlea then we will have a real problem to deal with.

I have pretty much decided on getting the Hyundai Imax as it is reasonably affordable for a big car and is quite easy to make wheelchair accessible.  New ones are as rare as hen's teeth at the moment but I have tracked one down and am going for a test drive tomorrow (if anyone else is in the market for one there are only 4 diesel autos in all of Sydney and they're all white - if you want a different colour you will have to wait until December).

We will be able to redraw the money from the mortgage so that is not a problem - I just hate being the one solely responsible for making big decisions like this!!!

Should I just do it???

It's too stressful to think about so tonight I am baking cinnamon buns to take the edge of :)

If anyone has any last minute car thoughts speak up now - I could be buying this car tomorrow!




Thursday, August 1, 2013

Thankful Thursday 1st August

This week I am thankful for:

- a fun family outing to see the Sydney Swans.  As many of you know family outings can be a little tricky for us with Ashlea, Emma's anxiety and Murray's brain injury.  This one was a great little win for our family - even Emma had fun in spite of having to be dragged kicking and screaming into the car to go;

Free Lunch!

The Big Swan Duck!


Don't worry - it wasn't all smooth sailing...

- Ashlea's improved coping ability.  Even though she did lose it when the game started she calmed down after 5 or 10 minutes;

- Kidney Health Australia for organising the family day out;

- seeing Ashlea and her kidney friends all thriving post-transplant;

- our faithful old van - and for it's show of consideration by dying gracefully in the driveway rather than while I was out and about with the kids in it;

- clean spa water;

Tip for spa owners - if you have a power outage don't forget to turn your
spa back on...otherwise the water will turn an interesting shade of green 

- random duck sightings;

I made flat bread to go with our dinner and one turned out to be a duck...

- getting to gate crash another church's women's event and eat scones with jam and cream while listening to encouraging women of God;

- being able to attend school open day;

- yummy lunch with school mum's for a friend's birthday;

- Thursday night shopping.


Also - we are doing the Big Red Walk this year to raise awareness for kidney disease.  If you would like to sponsor us here is the link.  Please feel no obligation to donate - but seeing as when you register you automatically get a fundraising page I thought it couldn't hurt to share the link:

http://bigredkidneywalk2013.gofundraise.com.au/page/Teamashlea



Thankful Thursday